„Patients and medical professionals working together on equal terms!“
The German Sarcoma Foundation is an "all open organisation" where patients and experts fight together against sarcomas/GIST in future. A visible and impactful organisation within the German health system will evolve that consolidates all different aspects of the German sarcoma/GIST field. Only if patients, carers, professionals, researchers and healthcare professionals concentrate ressources and ways forward there will be enough awareness for rare cancers like sarcomas and GIST, to improve the situation of patients.
Die Deutsche Sarkom-Stiftung: Gemeinsam gegen Sarkome
Our vision
There will undoubtedly one day be a cure for sarcomas! Until then patients and experts must work together in an engaged, quality-, outcome- and patient-focused fashion as part of an organisation to ensure that more sarcoma patients in Germany survive or live longer and better lives.
Our mission
Engaged innovative research, high-quality diagnostics and therapies offered by sarcoma experts working in interdisciplinary teams and patient-focused support all play an important role in offering sarcoma patients a better prognosis. Patients and experts are to work together in the following six areas:
| Area 1: Sarcoma research |
| Area 2: Patient-centred care structures |
| Area 3: Quality and accuracy of diagnoses/therapies |
| Area 4: Knowledge transfer |
| Area 5: Patient support |
| Area 6: Sarcoma awareness |
Our values
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Teamwork & Networking: Patients and medical professionals working together on equal terms |
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International: In well-established patient and expert organisations or in internationally initiated and supported projects |
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Proximity to patients/centres: Close to the patients' real needs and those of the experts and centres |
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Research: jointly with patients, not just about them, result-driven whilst being aware of the available resources |
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Economic viability: Meaningful and economic use of its finances in line with the Foundation’s mission |
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Neutrality and autonomy: Despite close co-operation with commercial enterprises |
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The Foundation’s governing bodies |
Board of directors, board of trustees (consulting, support, project and work groups, „Patient help sarcoma/GIST“ area 5) |
| Address | Deutsche Sarkom-Stiftung Caspar-Bender-Weg 31 61200 Wölfersheim (Södel), Deutschland Patient-Helpline: +49 (0)700 4884 0700 Website: www.sarkome.de Email: Facebook & Twitter: @Sarkomstiftung |
| Registration | 24. Oktober 2019 RP Darmstadt I 13 – 25d 04.10/1-2019 Non-profit foundation, note of 29. Nov. 2019 (tax office Gießen) |
| Statutes | Founding version as of 22 July and 4 October 2019 |
| Finances | Initial asset: 160.000,-- EUR Tax number: 20 250 84827 VAT-ID: DE327478653 |
| Donation account |
Volksbank Mittelhessen |